Three months ago I offered to help Josh re-establish his life by supporting him in a studio apartment for six months. The original plan was for him to contribute to his support in increasing amounts during the six months, so that by the end of the six months, he would be able to completely support himself.
Here we are at the halfway point, and he's unemployed.
Not exactly what I had in mind. While you could look at this and say this experiment has been a dismal failure; it certainly hasn't played out according to plan, I would say that we're headed in the right direction.
Josh is in treatment; on medications and in weekly therapy. That alone is worth the money I've spent.
God has answered my prayers in bringing Josh to this point. I've prayed for lots of things over the last year or so, because Josh's situation isn't the only thing I've been struggling through, in fact, I can think of no other time in my life when I've had AS MUCH to deal with, and I feel strongly that if God is only going to answer ONE of my prayers, this is the ONE I'd want him to address.
And he has. I continue to ask God to walk with Josh and give him strength and guide him to true acceptance.
But lucky me! God has also answered several of my other prayers. He has helped ME in accepting the ending of my personal relationship and he's given me the strength to move forward with my life.
He's also answered my SECOND most important need. He has put a job opportunity in my path that will allow me to climb out of debt and continue to support Josh financially as long as necessary.
The relief *I* feel to have Josh in treatment AND my financial situation addressed is HUGE.
Josh considers himself to be agnostic, yet I have a deep faith in God. Even Josh said not too long ago, "I don't know Mom, you look around at the world, all the beauty and wonder, HOW our bodies are so intricate, how we reproduce. It's all so finely honed, it almost makes ME believe that a higher power must be at work."
I know that for me, sometimes the ONLY thing that helps when faced with a crisis, is my faith that there is a higher power at work in all of it. When I'm able to turn my problems over to God....things always seem to begin heading in a better direction.
I spent a lot of time early in Josh's diagnosis holding onto it all so tightly, afraid to let go and let God because I suppose I was angry. If God could LET THIS HAPPEN, how could I ever trust him to handle it?
Silly me.
Eventually, as the stresses in my life began piling up, I had no choice but to turn it ALL over to God. Certainly when basic functioning was becoming a problem for me, I realized that *I* was powerless over almost ALL of my concerns.
I sit here today with hope, something I haven't felt in a long time. While I know Josh may continue to struggle with acceptance, that he may give up the fight, I also know that no matter what happens, I'll get through it. With the help of my friends and family, and my faith.
You might find it interesting that I don't attend church. I was raised in the church, and have turned to the church sporadically as an adult, but I sit here on a Sunday morning blogging, not in a church pew. In spite of the fact that I don't 'worship', I feel I have a strong relationship with God.
My faith has been shaken this past year or so, and I've had to remind myself of the story of Job...that perhaps my faith was just being tested. I don't KNOW, I'm not able to enter into a deep philosophical discussion on the matter, I only know how I feel about my relationship with God.
Perhaps there IS no God and all my praying is received by no one. Maybe it only serves to calm me and bring me a new awareness of how I need to move through my challenges. Whatever is at play, it works.
I believe in God for the same reasons Josh expressed. SOMEONE much bigger than me created all of this, and while I believe that God gives us free will, I also believe that he guides our lives. He gives us challenges so that we can learn and grow. What I have learned this last year or so, will guide the remainder of my life...I can apply these lessons to all areas of my life.
Let's hope that Josh is able to find work soon. Not so that I can relinquish financial responsibility to him, but so that he can begin to rebuild his life.
Showing posts with label Small Victories. Show all posts
Showing posts with label Small Victories. Show all posts
Sunday, July 17, 2011
Tuesday, June 22, 2010
Giving Back
You know, I have gotten so much out of the local DBSA Support Group meetings I attend every Monday night, but sometimes being able to give back can also help as you cope with this thing called Bipolar.
My sister, who lives out of town, called me early one day last week on her way to work.
"Melody you HAVE to go out today and get this book I'm reading. I noticed it last night on a display table of recently released books (she works part time at Barnes and Nobles) so I bought it and brought it home. I was exhausted last night, but I thought I'd read a few pages before I fell asleep. I couldn't put it down. It's called "Welcome to the Jungle...Everything you ever wanted to know about Bipolar, but were too freaked out to ask." The author was diagnosed at 19 and she's probably in her early twenties now. Anyway, it is written for young adults who are newly diagnosed, it's the book she says she wished someone would have handed her when she was newly diagnosed. I really like the way she writes about this Melody, and I think Josh has GOT to read it."
So I stopped at every bookstore I came across and a few I went out of my way to go to, that day, but the book had flown off all the shelves. (My sister said that when she went to work a few days later, the nine copies that were on the display table when she bought hers were gone.) It's interesting that a book about Bipolar would fly off the shelves, but that seems to be what happened in all the bookstores around me.
Anyway, I ordered three copies of the book and went home and downloaded it onto my Kindle. It took me about two hours to read it that day, and my sister was right, Josh NEEDED to read this book.
It's written by Hilary Smith and it is a gem of a book. First of all, it covers EVERYTHING about this disorder, and it's important to note that it covers things a young adult would be interested in knowing about, in addition to the more practical things. Basically she says, -Yes, it totally sucks that you have this horrible disorder that has no cure, and you're going to have to manage it the rest of your life, but you get to choose how you let if effect your life. You can fight against it, or you an learn to manage it. You can let it destroy your life, or you can have a great life in spite of it.-
I think if I were Josh's age, this book would be indispensable, but I also think that anyone who is parenting a Bipolar child should read this book. It helps you understand their mindset, the REAL things that are going through their minds at a time like this.
The book is funny and hip, written in a vernacular that would appeal to this age group. A few of the reviews of the book on Amazon mentioned that the book had some curse words, and yes there are a few, even the 'biggies' appear here and there. I cuss like a sailor, so that doesn't bother me, but I could see that it might offend others. This book is valuable enough in its content to be worth getting over that little thing though, if you're inclined to be offended by cussing.
And Hilary doesn't seem to be afraid to mention the word 'crazy', a word many people whose lives are affected by Bipolar tend to tip toe around. The fact of the matter is that Mania? With delusions? Ummmm, call it what you want, but it sure looked crazy to me, and I found it refreshing that she writes about it in the way she does. And because she's Bipolar, she can get away with it.
But mostly, I felt this book would be so empowering to someone in Josh's shoes.
I picked up my three copies the other day and gave one to Josh, then last night I took the other two to the DBSA Support Group Meeting to leave in their Lending Library. Last week during announcements, I mentioned this book and let everyone know that I had ordered two copies for the group.
There are several young people who attend our meetings and I hope that they take the time to read this book because I think it has such a powerful message. The group leader told me that she had downloaded it on her Kindle after I mentioned it last week and that she was looking forward to reading it and having her daughter read it.
I really wanted Josh to read it, but he had been so resistant to even discussing any of this that I wasn't sure how to GET him to read it. I have a long time online friend who has been very supportive since Josh's diagnosis. He suggested that I pay Josh to read it, so that's what I did. At this point Josh has read about half the book. When I gave it to him, he was still deeply in denial, but agreed to read it, but he was also in a slow thinking, foggy place and he's found it hard to process anything; reading being difficult for him.
I know he's gotten a lot out of the book though, because once he started reading it last week, he began asking questions about things he's said in the past that were delusional, etc. His speech became peppered with some of the things Hilary says in the book, and for the FIRST time, he began his sentences with things like, "Since I'm Bipolar" or "Now that I have Bipolar".
That is HUGE, and I really think that even though he hasn't finished the book yet (and not gotten paid!), he's already gotten a lot out of it. I have a feeling that this is a book he will turn to often for years (hopefully when he's considering doing something boneheaded, like going off meds or dropping acid).
One of the things he asked me last week was whether or not he is going to have to change his career plans. He has struggled trying to decide what course of study to follow in college and over the last month or two, he seems to have settled into Psychology.
"Mom, now that I have Bipolar, am I even going to be able to get licensed as a therapist?"
"Gosh honey, I don't know. Let's see if we can find some information about that on the internet."
None of our searches turned up any information, (I SO suck at Google searches!) so I said, "I know! We'll email Peter (Josh's therapist) and ask him."
Peter responded immediately, "Josh can be almost anything he wants to be in the Mental Health field."
So this book has clearly already had an impact on Josh and he hasn't even finished it yet. I have a feeling that I've left a couple of real treasures in the DBSA Lending Library. Treasures that will hopefully have a positive impact on many lives for years to come.
And that my friends makes me feel a gazillion times better, because sometimes, when life hands you something really shitty to deal with, the best thing you can do for yourself, is to reach outside your pain and suffering and offer a hand to someone else.
My sister, who lives out of town, called me early one day last week on her way to work.
"Melody you HAVE to go out today and get this book I'm reading. I noticed it last night on a display table of recently released books (she works part time at Barnes and Nobles) so I bought it and brought it home. I was exhausted last night, but I thought I'd read a few pages before I fell asleep. I couldn't put it down. It's called "Welcome to the Jungle...Everything you ever wanted to know about Bipolar, but were too freaked out to ask." The author was diagnosed at 19 and she's probably in her early twenties now. Anyway, it is written for young adults who are newly diagnosed, it's the book she says she wished someone would have handed her when she was newly diagnosed. I really like the way she writes about this Melody, and I think Josh has GOT to read it."
So I stopped at every bookstore I came across and a few I went out of my way to go to, that day, but the book had flown off all the shelves. (My sister said that when she went to work a few days later, the nine copies that were on the display table when she bought hers were gone.) It's interesting that a book about Bipolar would fly off the shelves, but that seems to be what happened in all the bookstores around me.
Anyway, I ordered three copies of the book and went home and downloaded it onto my Kindle. It took me about two hours to read it that day, and my sister was right, Josh NEEDED to read this book.
It's written by Hilary Smith and it is a gem of a book. First of all, it covers EVERYTHING about this disorder, and it's important to note that it covers things a young adult would be interested in knowing about, in addition to the more practical things. Basically she says, -Yes, it totally sucks that you have this horrible disorder that has no cure, and you're going to have to manage it the rest of your life, but you get to choose how you let if effect your life. You can fight against it, or you an learn to manage it. You can let it destroy your life, or you can have a great life in spite of it.-
I think if I were Josh's age, this book would be indispensable, but I also think that anyone who is parenting a Bipolar child should read this book. It helps you understand their mindset, the REAL things that are going through their minds at a time like this.
The book is funny and hip, written in a vernacular that would appeal to this age group. A few of the reviews of the book on Amazon mentioned that the book had some curse words, and yes there are a few, even the 'biggies' appear here and there. I cuss like a sailor, so that doesn't bother me, but I could see that it might offend others. This book is valuable enough in its content to be worth getting over that little thing though, if you're inclined to be offended by cussing.
And Hilary doesn't seem to be afraid to mention the word 'crazy', a word many people whose lives are affected by Bipolar tend to tip toe around. The fact of the matter is that Mania? With delusions? Ummmm, call it what you want, but it sure looked crazy to me, and I found it refreshing that she writes about it in the way she does. And because she's Bipolar, she can get away with it.
But mostly, I felt this book would be so empowering to someone in Josh's shoes.
I picked up my three copies the other day and gave one to Josh, then last night I took the other two to the DBSA Support Group Meeting to leave in their Lending Library. Last week during announcements, I mentioned this book and let everyone know that I had ordered two copies for the group.
There are several young people who attend our meetings and I hope that they take the time to read this book because I think it has such a powerful message. The group leader told me that she had downloaded it on her Kindle after I mentioned it last week and that she was looking forward to reading it and having her daughter read it.
I really wanted Josh to read it, but he had been so resistant to even discussing any of this that I wasn't sure how to GET him to read it. I have a long time online friend who has been very supportive since Josh's diagnosis. He suggested that I pay Josh to read it, so that's what I did. At this point Josh has read about half the book. When I gave it to him, he was still deeply in denial, but agreed to read it, but he was also in a slow thinking, foggy place and he's found it hard to process anything; reading being difficult for him.
I know he's gotten a lot out of the book though, because once he started reading it last week, he began asking questions about things he's said in the past that were delusional, etc. His speech became peppered with some of the things Hilary says in the book, and for the FIRST time, he began his sentences with things like, "Since I'm Bipolar" or "Now that I have Bipolar".
That is HUGE, and I really think that even though he hasn't finished the book yet (and not gotten paid!), he's already gotten a lot out of it. I have a feeling that this is a book he will turn to often for years (hopefully when he's considering doing something boneheaded, like going off meds or dropping acid).
One of the things he asked me last week was whether or not he is going to have to change his career plans. He has struggled trying to decide what course of study to follow in college and over the last month or two, he seems to have settled into Psychology.
"Mom, now that I have Bipolar, am I even going to be able to get licensed as a therapist?"
"Gosh honey, I don't know. Let's see if we can find some information about that on the internet."
None of our searches turned up any information, (I SO suck at Google searches!) so I said, "I know! We'll email Peter (Josh's therapist) and ask him."
Peter responded immediately, "Josh can be almost anything he wants to be in the Mental Health field."
So this book has clearly already had an impact on Josh and he hasn't even finished it yet. I have a feeling that I've left a couple of real treasures in the DBSA Lending Library. Treasures that will hopefully have a positive impact on many lives for years to come.
And that my friends makes me feel a gazillion times better, because sometimes, when life hands you something really shitty to deal with, the best thing you can do for yourself, is to reach outside your pain and suffering and offer a hand to someone else.
Sunday, June 20, 2010
Knowledge is Power
When Josh landed in the hospital and the man who had evaluated him opened his mouth and said, "Your son is in a mild manic state and from his history, it's clear that he has Bipolar Disorder," I was too exhausted and frightened to fully get the gravity of the diagnosis.
Oh, I knew it was bad.
I remember standing and talking with a teacher on Field Day when Jordan was in Elementary School. For some reason, this woman shared with me the story of her son, who was what was then called Manic-Depressive. Unfortunately, it was a fairly typical story of a young man who struggled against the Disorder and lost his battle with it at the age of 24 by killing himself.
I can remember so clearly having the sensation of this woman's pain pouring over me in waves.
So, I knew it was bad.
But I really knew nothing at all.
I now know more than I ever wanted to know about this Disorder, and I'm pretty sure I'll never stop learning.
The internet is a both a blessing and a curse when researching something of this nature. There is a wealth of useful information to be had and what you read there can scare the holy crap out of you.
I visited message boards and forums and the stories I read kept me awake at night, it seemed like everyone was so badly affected by Bipolar. What I quickly realized though is that the people who are posting on message boards fall into one of maybe three categories.
1. People like myself who are new to the Disorder and are seeking help.
2. People who are struggling with the disorder and are seeking help.
3. People who have the disorder and have no intention of addressing it properly, but want to whine.
The fact of the matter is, that for the most part, people who are struggling post on message boards. People who have control over the disorder and are living perfectly normal lives, thankyouverymuch, are out living their perfectly normal lives and not posting messages on boards and forums.
So keep that in mind when you are searching for information. Don't be discouraged by the dearth of happily ever after you read there.
While searching for information about various medications, there are horror stories aplenty too. Because these drugs affect everyone so differently, it can be disheartening to read about other's experiences with side effects and withdrawal symptoms. It is beyond alarming what some people have been through on the journey for the right combination of medications.
It didn't take me long to decide that I needed a book. A good book. A simple, but thorough book, and so I headed to Borders.
I came home with a book that I felt was appropriate to the situation, "Bipolar For Dummies", because I definitely qualified as a Dummy on the subject.
As a starter book, I would highly recommend this one. It covers all aspects of the Disorder and has a section for Caretakers. It is very technical in explaining the Disorder and I completely understood what "happens" in the Bipolar Brain. Granted, I couldn't explain it to anyone else if my life depended on it, but I understood it as I read it.
The book was copyrighted several years ago, so the information may not be the most up-to-date, but I still think it provides a good jumping off point in the quest for Knowledge.
Next I contacted the local chapter of The Depression and Bipolar Support Alliance: DBSA and I began attending Support Group meetings.
This was a difficult step for me to take, and I hate to admit it, but it took me several weeks to make that call. And another week to actually attend a meeting. It seemed like stepping across that threshold was me acknowledging the reality of Josh's illness.
Yes, even parents have to work through denial.
If you're faced with a diagnosis of Bipolar, get over your denial quicker than I did, because the help and support you will find at DBSA will be invaluable to you. I actually look forward to our Monday night meetings.
Once I'd armed myself with knowledge and support, I realized that I didn't have a clue how to actually deal with my son on a day to day basis.
All of a sudden this son of mine was completely unfamiliar to me. He was unstable when he came home from the hospital, and while the medications had brought him down from his high, his disordered and occasional delusional thought processes were something totally new to me. I had no idea how to communicate with him.
At a time when I REALLY needed to be able to communicate with him effectively.
Josh displayed HORRIBLE rages when he came home, all directed at me. Anything was liable to set him off. One day he was sitting in my office talking to me and a bird flew by my office window. In a natural response to peripheral movement, I shifted my eyes to the window. Josh jumped up, pounded his fist in the middle of my desk hard enough to make things on it jump, and screamed at me, "Pay attention when I talk to you!" Clearly I'd done nothing 'wrong', but in his mind I was Satan incarnate sent up from the bowels of hell with the express purpose of infuriating him. His rages could have been induced by the medication, irritability IS one of the lovely attibutes of Bipolar Disorder, but some medications ramp it up a notch, to one notch just below homicidal.
So I learned. Slowly. Over WEEKS.
The problem was that everyday, a different version of Josh climbed out of bed. What worked yesterday in that mood, inflamed him today in this mood.
I'll save anyone out there who is dealing with a newly diagnosed Bipolar person some time and tell you a little secret. No matter what, stay calm and agree with everything they say.
OK, so I hate to admit this too, but early on I would make matters worse by arguing with Josh and occasionally I got downright mad at him.
Who wouldn't? Seriously?!
It takes time to realize that this person in front of you HAS NO CONCEPT OF WHAT THEY'RE DOING.
Oh, you know it on an intellectual level, but it takes real effort to remember that in the heat of a very violent moment.
The truth is that stress is one of the worst things for a Bipolar person. Stress builds and builds and builds inside them, and can send them directly into a manic state; do not pass go, do not collect your Seroquel.
So for days, maybe even weeks *shudders* I made matters worse for Josh, and myself, but I learned. Eventually I learned.
I learned to agree with anything he said, "Yes, I'm the most horrible parent in the world, I don't know how you've lived with me all these years, and yes, I need therapy and probably a parenting class or two."
But the biggest thing I learned was to let go and let God.
And God seems to be doing a pretty good job of handling this, because yesterday? JOSH climbed out of bed. My Josh. The one I knew before that awful man in the hospital uttered those words, the one I knew before depression settled over him like an early morning fog, the one who used to be happy and surrounded by friends, rushing here and there, living a busy, fulfilling life.
It seems the medication has quickly worked its way out of Josh's system and, where he was slow and foggy, he's sharp and bright. Where he was sad and desolate, he's happy and hopeful. He's not the slightest bit manic and his thought processes seem to be in good working order.
Today while I was out of town, Josh went out to play baseball with two of his OLD friends. You know, the friends HE pushed out of his life way back there when he was depressed and on the way to suicidal. And as I type this, one of those friends is in his room with him, doing what they used to do...play a video game.
The most difficult lesson I've learned though is that tomorrow is a complete unknown with this Disorder, especially at the stage of acceptance that we are in.
We aren't treating the Disorder at all at this point, although Josh is being very careful about his sleep schedule, because for him and many who suffer with Bipolar, sleep deprivation is a one way ticket to Mania City.
Josh could be fine for days or months, or possibly even years before the monster rears it's ugly head again. And Josh could wake up TOMORROW headed towards a manic state.
So I've learned to take all this one day at a time, appreciating the good days and looking for more lessons in the bad ones.
Because in the end? I'm just about all Josh has right now and I don't intend to let him down.
Oh, I knew it was bad.
I remember standing and talking with a teacher on Field Day when Jordan was in Elementary School. For some reason, this woman shared with me the story of her son, who was what was then called Manic-Depressive. Unfortunately, it was a fairly typical story of a young man who struggled against the Disorder and lost his battle with it at the age of 24 by killing himself.
I can remember so clearly having the sensation of this woman's pain pouring over me in waves.
So, I knew it was bad.
But I really knew nothing at all.
I now know more than I ever wanted to know about this Disorder, and I'm pretty sure I'll never stop learning.
The internet is a both a blessing and a curse when researching something of this nature. There is a wealth of useful information to be had and what you read there can scare the holy crap out of you.
I visited message boards and forums and the stories I read kept me awake at night, it seemed like everyone was so badly affected by Bipolar. What I quickly realized though is that the people who are posting on message boards fall into one of maybe three categories.
1. People like myself who are new to the Disorder and are seeking help.
2. People who are struggling with the disorder and are seeking help.
3. People who have the disorder and have no intention of addressing it properly, but want to whine.
The fact of the matter is, that for the most part, people who are struggling post on message boards. People who have control over the disorder and are living perfectly normal lives, thankyouverymuch, are out living their perfectly normal lives and not posting messages on boards and forums.
So keep that in mind when you are searching for information. Don't be discouraged by the dearth of happily ever after you read there.
While searching for information about various medications, there are horror stories aplenty too. Because these drugs affect everyone so differently, it can be disheartening to read about other's experiences with side effects and withdrawal symptoms. It is beyond alarming what some people have been through on the journey for the right combination of medications.
It didn't take me long to decide that I needed a book. A good book. A simple, but thorough book, and so I headed to Borders.
I came home with a book that I felt was appropriate to the situation, "Bipolar For Dummies", because I definitely qualified as a Dummy on the subject.
As a starter book, I would highly recommend this one. It covers all aspects of the Disorder and has a section for Caretakers. It is very technical in explaining the Disorder and I completely understood what "happens" in the Bipolar Brain. Granted, I couldn't explain it to anyone else if my life depended on it, but I understood it as I read it.
The book was copyrighted several years ago, so the information may not be the most up-to-date, but I still think it provides a good jumping off point in the quest for Knowledge.
Next I contacted the local chapter of The Depression and Bipolar Support Alliance: DBSA and I began attending Support Group meetings.
This was a difficult step for me to take, and I hate to admit it, but it took me several weeks to make that call. And another week to actually attend a meeting. It seemed like stepping across that threshold was me acknowledging the reality of Josh's illness.
Yes, even parents have to work through denial.
If you're faced with a diagnosis of Bipolar, get over your denial quicker than I did, because the help and support you will find at DBSA will be invaluable to you. I actually look forward to our Monday night meetings.
Once I'd armed myself with knowledge and support, I realized that I didn't have a clue how to actually deal with my son on a day to day basis.
All of a sudden this son of mine was completely unfamiliar to me. He was unstable when he came home from the hospital, and while the medications had brought him down from his high, his disordered and occasional delusional thought processes were something totally new to me. I had no idea how to communicate with him.
At a time when I REALLY needed to be able to communicate with him effectively.
Josh displayed HORRIBLE rages when he came home, all directed at me. Anything was liable to set him off. One day he was sitting in my office talking to me and a bird flew by my office window. In a natural response to peripheral movement, I shifted my eyes to the window. Josh jumped up, pounded his fist in the middle of my desk hard enough to make things on it jump, and screamed at me, "Pay attention when I talk to you!" Clearly I'd done nothing 'wrong', but in his mind I was Satan incarnate sent up from the bowels of hell with the express purpose of infuriating him. His rages could have been induced by the medication, irritability IS one of the lovely attibutes of Bipolar Disorder, but some medications ramp it up a notch, to one notch just below homicidal.
So I learned. Slowly. Over WEEKS.
The problem was that everyday, a different version of Josh climbed out of bed. What worked yesterday in that mood, inflamed him today in this mood.
I'll save anyone out there who is dealing with a newly diagnosed Bipolar person some time and tell you a little secret. No matter what, stay calm and agree with everything they say.
OK, so I hate to admit this too, but early on I would make matters worse by arguing with Josh and occasionally I got downright mad at him.
Who wouldn't? Seriously?!
It takes time to realize that this person in front of you HAS NO CONCEPT OF WHAT THEY'RE DOING.
Oh, you know it on an intellectual level, but it takes real effort to remember that in the heat of a very violent moment.
The truth is that stress is one of the worst things for a Bipolar person. Stress builds and builds and builds inside them, and can send them directly into a manic state; do not pass go, do not collect your Seroquel.
So for days, maybe even weeks *shudders* I made matters worse for Josh, and myself, but I learned. Eventually I learned.
I learned to agree with anything he said, "Yes, I'm the most horrible parent in the world, I don't know how you've lived with me all these years, and yes, I need therapy and probably a parenting class or two."
But the biggest thing I learned was to let go and let God.
And God seems to be doing a pretty good job of handling this, because yesterday? JOSH climbed out of bed. My Josh. The one I knew before that awful man in the hospital uttered those words, the one I knew before depression settled over him like an early morning fog, the one who used to be happy and surrounded by friends, rushing here and there, living a busy, fulfilling life.
It seems the medication has quickly worked its way out of Josh's system and, where he was slow and foggy, he's sharp and bright. Where he was sad and desolate, he's happy and hopeful. He's not the slightest bit manic and his thought processes seem to be in good working order.
Today while I was out of town, Josh went out to play baseball with two of his OLD friends. You know, the friends HE pushed out of his life way back there when he was depressed and on the way to suicidal. And as I type this, one of those friends is in his room with him, doing what they used to do...play a video game.
The most difficult lesson I've learned though is that tomorrow is a complete unknown with this Disorder, especially at the stage of acceptance that we are in.
We aren't treating the Disorder at all at this point, although Josh is being very careful about his sleep schedule, because for him and many who suffer with Bipolar, sleep deprivation is a one way ticket to Mania City.
Josh could be fine for days or months, or possibly even years before the monster rears it's ugly head again. And Josh could wake up TOMORROW headed towards a manic state.
So I've learned to take all this one day at a time, appreciating the good days and looking for more lessons in the bad ones.
Because in the end? I'm just about all Josh has right now and I don't intend to let him down.
Thursday, June 17, 2010
So Here We Are
Today I sat down with Peter, the therapist that Josh had been seeing before being hospitalized. Peter has been very helpful to ME as I've moved through the past few months trying to deal with something I have no knowledge about.
Bipolar.
Specifically, I need Peter to help me in guiding Josh toward mature responsibility. Not just responsibility surrounding his disorder, but his long standing life issues; his inability to just basically get his shit together and act like a 20 year old.
I made headway this week during a discussion with Josh about his need to contribute in some way to the running of this household. He does basic chores if asked, on occasion without being asked, but he has a sense of entitlement that needs to change.
On the one hand Josh insists on being treated like an adult, because hey! He's 20 years old! But often his behavior is more akin to a 12 year old. I've been encouraging him to get a second job since he sat out a semester of college due to his depression. Well, it's about time for college to start again and he still has one job that offers him less than 20 hours a week. There's a whole lot of time in there that he needs to fill.
After much discussion we agreed that he would clean the house each Friday in lieu of beginning to pay me a nominal amount of 'rent'. His brain is so fuzzy right now though that he asked me to text him each Friday morning to remind him to clean the house.
Peter and I agree that baby steps are in order. The one thing that someone dealing with Bipolar needs to avoid is stress. Stress builds and builds and sends someone with Bipolar into a manic episode.
So tread lightly.
Peter and I talked about the discussions that Josh and I have been having where I feel he is leaning more towards acceptance. Peter feels that I am handling those discussions very well, acknowledging how difficult of a diagnosis it is to accept, and stressing the importance of management as the key.
Peter feels that Josh's questions regarding past delusional episodes, and his recognition that he was likely a bit delusional when talking with his friend one night, are all great indicators that he's really beginning to 'see' the truth.
Josh has been extremely flaky today. We went out to dinner and when we returned he told me he was going to smoke pot.
My stand on pot? Well, I'm not gonna sit here and lie and say I've never smoked pot, or lie and say that when I did smoke it I didn't inhale. Personally, I wish they'd legalize the stuff because then the product that our kids would be smoking would be controlled and safer, there would be tax revenues, and if you think for one second that you can control it's use by keeping it illegal, you're nuts.
Do I want Josh smokin' pot? I honestly can't say because I've read such differing views on the subject of pot and bipolar. I think that's a heavy subject for its own post in the near future.
I can tell you this much. The problem with pot is probably twofold. It affects everyone differently and each medication differently and the quality of pot and what it might be laced with is a concern.
And I'll also tell you this. After Josh smoked tonight, he joined me out on the deck and he became increasingly 'sad'. He said he feels like he's a shitty person, that *I* think he's a shitty person. And while his anxiety level was a little elevated all day, he became more and more anxious as the evening wore on. But the interesting thing is that HE noticed this himself.
His anxiety took MANY forms tonight. He's worried about his thyroid, had me pull up a picture of it on the internet. Then he was concerned that the benadryl he was taking to help him sleep was SO little it would get stuck in his throat because his throat hurts and he thinks his thyroid may be enlarged. And he's almost sure he's all of a sudden allergic to his contact solution because his eyes look weird to him and in fact, last night he got some contact solution on his finger and it burned.
It is almost midnight and he's having a hell of a time getting to sleep. I taught him how to belly breath, because he's SO anxious. I finally said, "Go lay down, put on some soft music and belly breath...just concentrate on your breath."
Sheesh, he's wearin' me out.
The fact of the matter is, and I told Josh this, the last eight weeks have been hell. For both of us, but mostly for his poor brain. It's be inundated with all manner of drugs. Sedatives, sleeping aids, this dose of medicine, NO, this dose, NO this dose. Sheesh, no wonder Josh is a walking buffoon.
"I think you'll feel less foggy in a week or so, once all these chemicals are out of your brain, and then we'll see what happens."
And today, while sitting on the front porch with me, Josh looked at me and said, "Well, what are we gonna do if I get bad again?
"You mean like manic?"
"Yeah"
"Well, I don't know. I talked to Patrick today about the Psychiatrists in his office, and that's an option, but he also said they have a Clinical NP who is very good, a little less expensive and he felt she might be a good fit for you, so you should think about if you'd like to see her, or one of their Psychiatrists sometime soon, so they know you, you are under their care, and then if you become manic, we have someone who can help us out."
Josh and I both are having fasting blood work done next Wednesday, ahead of our Physicals which are scheduled for Monday. I will go in with Josh at the beginning of his appointment and discuss our concerns with the doctor. I told Josh that I want him to listen as I talk to the doctor so he can learn to communicate effectively with the professionals in charge of his care.
"It's going to be very important that YOU learn how to ask questions and even challenge the doctors. If they suggest something you don't understand, ask them to explain. If they propose something that you're not comfortable with, ask them what alternatives are available. YOU really are in charge of ALL the decisions about this, but you have to be able to be an advocate for yourself."
Bipolar.
Specifically, I need Peter to help me in guiding Josh toward mature responsibility. Not just responsibility surrounding his disorder, but his long standing life issues; his inability to just basically get his shit together and act like a 20 year old.
I made headway this week during a discussion with Josh about his need to contribute in some way to the running of this household. He does basic chores if asked, on occasion without being asked, but he has a sense of entitlement that needs to change.
On the one hand Josh insists on being treated like an adult, because hey! He's 20 years old! But often his behavior is more akin to a 12 year old. I've been encouraging him to get a second job since he sat out a semester of college due to his depression. Well, it's about time for college to start again and he still has one job that offers him less than 20 hours a week. There's a whole lot of time in there that he needs to fill.
After much discussion we agreed that he would clean the house each Friday in lieu of beginning to pay me a nominal amount of 'rent'. His brain is so fuzzy right now though that he asked me to text him each Friday morning to remind him to clean the house.
Peter and I agree that baby steps are in order. The one thing that someone dealing with Bipolar needs to avoid is stress. Stress builds and builds and sends someone with Bipolar into a manic episode.
So tread lightly.
Peter and I talked about the discussions that Josh and I have been having where I feel he is leaning more towards acceptance. Peter feels that I am handling those discussions very well, acknowledging how difficult of a diagnosis it is to accept, and stressing the importance of management as the key.
Peter feels that Josh's questions regarding past delusional episodes, and his recognition that he was likely a bit delusional when talking with his friend one night, are all great indicators that he's really beginning to 'see' the truth.
Josh has been extremely flaky today. We went out to dinner and when we returned he told me he was going to smoke pot.
My stand on pot? Well, I'm not gonna sit here and lie and say I've never smoked pot, or lie and say that when I did smoke it I didn't inhale. Personally, I wish they'd legalize the stuff because then the product that our kids would be smoking would be controlled and safer, there would be tax revenues, and if you think for one second that you can control it's use by keeping it illegal, you're nuts.
Do I want Josh smokin' pot? I honestly can't say because I've read such differing views on the subject of pot and bipolar. I think that's a heavy subject for its own post in the near future.
I can tell you this much. The problem with pot is probably twofold. It affects everyone differently and each medication differently and the quality of pot and what it might be laced with is a concern.
And I'll also tell you this. After Josh smoked tonight, he joined me out on the deck and he became increasingly 'sad'. He said he feels like he's a shitty person, that *I* think he's a shitty person. And while his anxiety level was a little elevated all day, he became more and more anxious as the evening wore on. But the interesting thing is that HE noticed this himself.
His anxiety took MANY forms tonight. He's worried about his thyroid, had me pull up a picture of it on the internet. Then he was concerned that the benadryl he was taking to help him sleep was SO little it would get stuck in his throat because his throat hurts and he thinks his thyroid may be enlarged. And he's almost sure he's all of a sudden allergic to his contact solution because his eyes look weird to him and in fact, last night he got some contact solution on his finger and it burned.
It is almost midnight and he's having a hell of a time getting to sleep. I taught him how to belly breath, because he's SO anxious. I finally said, "Go lay down, put on some soft music and belly breath...just concentrate on your breath."
Sheesh, he's wearin' me out.
The fact of the matter is, and I told Josh this, the last eight weeks have been hell. For both of us, but mostly for his poor brain. It's be inundated with all manner of drugs. Sedatives, sleeping aids, this dose of medicine, NO, this dose, NO this dose. Sheesh, no wonder Josh is a walking buffoon.
"I think you'll feel less foggy in a week or so, once all these chemicals are out of your brain, and then we'll see what happens."
And today, while sitting on the front porch with me, Josh looked at me and said, "Well, what are we gonna do if I get bad again?
"You mean like manic?"
"Yeah"
"Well, I don't know. I talked to Patrick today about the Psychiatrists in his office, and that's an option, but he also said they have a Clinical NP who is very good, a little less expensive and he felt she might be a good fit for you, so you should think about if you'd like to see her, or one of their Psychiatrists sometime soon, so they know you, you are under their care, and then if you become manic, we have someone who can help us out."
Josh and I both are having fasting blood work done next Wednesday, ahead of our Physicals which are scheduled for Monday. I will go in with Josh at the beginning of his appointment and discuss our concerns with the doctor. I told Josh that I want him to listen as I talk to the doctor so he can learn to communicate effectively with the professionals in charge of his care.
"It's going to be very important that YOU learn how to ask questions and even challenge the doctors. If they suggest something you don't understand, ask them to explain. If they propose something that you're not comfortable with, ask them what alternatives are available. YOU really are in charge of ALL the decisions about this, but you have to be able to be an advocate for yourself."
And I Just Keep Learning........
Originally posted on my private blog on June 16, 2010
Yesterday I went with Josh to his Nurses Appointment at the Mental Health Center. The nurse took Josh back and wouldn't let me go back with him. But when he came out, she asked to speak to me.
She said that Josh is unwilling to continue therapy there, has been resistant to talking to ANY of them and because of that he is considered to be no longer under their care, therefore she can't provide a prescription for him.
"That's fine," I said, "that's his decision, but he's chosen to stop his medication and I was hoping that you could at least prescribe enough medicine for him to carefully step off the meds."
"Well, I'm willing to give you a one month prescription, but really, he doesn't need to step off of this. He's on a fairly low dosage, so if he discontinues it, there will be no withdrawal symptoms."
Then she preceded to tell me that Josh needs addiction counseling. "He's going to get nowhere until he stops using pot, and I explained that to him, explained why pot interferes with his disorder. This is a very difficult situation for you, I know that, what are you doing to take care of yourself?"
"Well, I have a lot of support from friends and family and I attend a Bipolar Support Group, I'm doing ok, but yes, it's a very frustrating position to be in."
"Yes it is and I'm glad you're getting support, but you should consider seeing a therapist for yourself to help you with all this. The lines between helping and enabling get very blurry when you're in the middle of something like this."
Duh.
Josh and I spent the rest of the day and evening together. We talked a lot. And for the first time I felt like I'd made a few small victories. He began asking me more questions about his behavior, specifically what things he'd said in the past that seemed delusional.
"Well, you told me that you and I could get along together better if I'd open my bedroom window. That my office window was open and that we could live peacefully here together if I'd just open my bedroom window too."
"Yeah, but I know what I meant by that."
"What did you mean then? In what context does a statement like that make ANY sense?"
He started to talk, but stopped and stared off into space. Then his face fell and he said, "None huh?"
Then later he said that when his friend Jon was over the night before, Jon told him that he didn't seem like himself, so he was thinking about what he had been talking about at the time, "I think maybe I was a little delusional Mom."
And the look on his face? Well, it was heartbreaking, because he looked so defeated.
"Josh, I know it must be so hard to realize that you've said things like that that make no sense, but to YOU, in a certain frame of mind, at the time, they made PERFECT sense. That's why I wanted you to read that book, "Welcome to the Jungle". She says, "Hey, it's horrible to find out you have this disorder, that you have something that can't be cured and that you have to live with for the rest of your life; that totally sucks," but the book is very empowering Josh cause she shows you that yes, it sucks, but it's manageable, you can live a normal life if you manage it properly with medication and good lifestyle choices, cause the alternative, to do nothing, will destroy your life."
"But how Mom, how can something like this destroy your life?"
"Well, it affects all aspects of your life. Like Jon last night, he knows about your disorder, so you can explain to him that your nonsense talk is related to that, but what if you were talking to a girl you just met at school and said something nutty, chances are good she's not gonna want to continue talking to you. And what if, as part of your job, you had to give a presentation to the Board of Directors, and in the middle of it you finish a sentence by saying, "so it's plain to see that if we dip our tampons in our coffee, it sweetens it." The point is that without treatment, Bipolar can affect every aspect of your life negatively, and it doesn't have to be that way. Millions of people who have Bipolar live perfectly normal lives. Yes, they have to manage it everyday, but there are tons of people walking around with this and you'd never even know they have it because they manage it properly."
I could just tell that he was really thinking about all this in a different way then he has in the past. You can tell he wants to stay in denial, that's a really warm comfy blanket, but he's beginning to at least pull back the covers and consider that there might be something to all this.
And then this morning when I got up I found him still awake in his room. He stopped his meds last night, and as a result he hadn't slept. He had taken a dose of pediatric benadryl, but it hadn't helped. He has been borderline manic the last two days, since he missed a night of sleep. He's not hyper talking, but his thoughts are jumbled, he struggles to stay on track in conversation. So another night of missed sleep and I fear we're off to the races.
I tried to explain to him yesterday that what SHOULD have happened is that he be under the care of a Psychiatrist when he stopped his meds, then the doctor could prescribe a sleep aid. But since he's refused to stay in care, he's in the position of having no one to help him with all this.
We also talked about 'what if', something he wasn't willing to talk about before. I told him that when he stops his meds it's possible he'll be fine, but it's also possible that he'll struggle with sleep and become manic. "You say you don't want to be hospitalized again EVER, but the first thing they do is give you sedatives to bring you down. If you become manic again, WHAT do you want me to do?"
"Nothing!"
"But honey, you can't just go on like that, in that state! A manic episode can last MONTHS, I barely made it through that one day with you like that! I suppose if you were under the care of a psychiatrist, he might be able to prescribe something that we could have on hand to assist in bringing you down, but you're not under the care of ANYONE. Honey, you kind of put me in a bad position here. You don't want to go to the hospital, but I have no real tools here to help you in a situation like that."
Nothing was really settled yesterday. I still have no idea what I'll do if he becomes manic again, I suppose I'd have to call the police and have him hospitalized against his will, but man, I hate the thought of having to do that.
Since he missed another nights sleep last night, I imagine the next day or two are going to be interesting.
So, I'm learning. I'm learning how to find the right words and the right moments to impact Josh's thinking.
Please keep Josh in your prayers. I'm almost sure the roller coaster is cresting the hill again.
Yesterday I went with Josh to his Nurses Appointment at the Mental Health Center. The nurse took Josh back and wouldn't let me go back with him. But when he came out, she asked to speak to me.
She said that Josh is unwilling to continue therapy there, has been resistant to talking to ANY of them and because of that he is considered to be no longer under their care, therefore she can't provide a prescription for him.
"That's fine," I said, "that's his decision, but he's chosen to stop his medication and I was hoping that you could at least prescribe enough medicine for him to carefully step off the meds."
"Well, I'm willing to give you a one month prescription, but really, he doesn't need to step off of this. He's on a fairly low dosage, so if he discontinues it, there will be no withdrawal symptoms."
Then she preceded to tell me that Josh needs addiction counseling. "He's going to get nowhere until he stops using pot, and I explained that to him, explained why pot interferes with his disorder. This is a very difficult situation for you, I know that, what are you doing to take care of yourself?"
"Well, I have a lot of support from friends and family and I attend a Bipolar Support Group, I'm doing ok, but yes, it's a very frustrating position to be in."
"Yes it is and I'm glad you're getting support, but you should consider seeing a therapist for yourself to help you with all this. The lines between helping and enabling get very blurry when you're in the middle of something like this."
Duh.
Josh and I spent the rest of the day and evening together. We talked a lot. And for the first time I felt like I'd made a few small victories. He began asking me more questions about his behavior, specifically what things he'd said in the past that seemed delusional.
"Well, you told me that you and I could get along together better if I'd open my bedroom window. That my office window was open and that we could live peacefully here together if I'd just open my bedroom window too."
"Yeah, but I know what I meant by that."
"What did you mean then? In what context does a statement like that make ANY sense?"
He started to talk, but stopped and stared off into space. Then his face fell and he said, "None huh?"
Then later he said that when his friend Jon was over the night before, Jon told him that he didn't seem like himself, so he was thinking about what he had been talking about at the time, "I think maybe I was a little delusional Mom."
And the look on his face? Well, it was heartbreaking, because he looked so defeated.
"Josh, I know it must be so hard to realize that you've said things like that that make no sense, but to YOU, in a certain frame of mind, at the time, they made PERFECT sense. That's why I wanted you to read that book, "Welcome to the Jungle". She says, "Hey, it's horrible to find out you have this disorder, that you have something that can't be cured and that you have to live with for the rest of your life; that totally sucks," but the book is very empowering Josh cause she shows you that yes, it sucks, but it's manageable, you can live a normal life if you manage it properly with medication and good lifestyle choices, cause the alternative, to do nothing, will destroy your life."
"But how Mom, how can something like this destroy your life?"
"Well, it affects all aspects of your life. Like Jon last night, he knows about your disorder, so you can explain to him that your nonsense talk is related to that, but what if you were talking to a girl you just met at school and said something nutty, chances are good she's not gonna want to continue talking to you. And what if, as part of your job, you had to give a presentation to the Board of Directors, and in the middle of it you finish a sentence by saying, "so it's plain to see that if we dip our tampons in our coffee, it sweetens it." The point is that without treatment, Bipolar can affect every aspect of your life negatively, and it doesn't have to be that way. Millions of people who have Bipolar live perfectly normal lives. Yes, they have to manage it everyday, but there are tons of people walking around with this and you'd never even know they have it because they manage it properly."
I could just tell that he was really thinking about all this in a different way then he has in the past. You can tell he wants to stay in denial, that's a really warm comfy blanket, but he's beginning to at least pull back the covers and consider that there might be something to all this.
And then this morning when I got up I found him still awake in his room. He stopped his meds last night, and as a result he hadn't slept. He had taken a dose of pediatric benadryl, but it hadn't helped. He has been borderline manic the last two days, since he missed a night of sleep. He's not hyper talking, but his thoughts are jumbled, he struggles to stay on track in conversation. So another night of missed sleep and I fear we're off to the races.
I tried to explain to him yesterday that what SHOULD have happened is that he be under the care of a Psychiatrist when he stopped his meds, then the doctor could prescribe a sleep aid. But since he's refused to stay in care, he's in the position of having no one to help him with all this.
We also talked about 'what if', something he wasn't willing to talk about before. I told him that when he stops his meds it's possible he'll be fine, but it's also possible that he'll struggle with sleep and become manic. "You say you don't want to be hospitalized again EVER, but the first thing they do is give you sedatives to bring you down. If you become manic again, WHAT do you want me to do?"
"Nothing!"
"But honey, you can't just go on like that, in that state! A manic episode can last MONTHS, I barely made it through that one day with you like that! I suppose if you were under the care of a psychiatrist, he might be able to prescribe something that we could have on hand to assist in bringing you down, but you're not under the care of ANYONE. Honey, you kind of put me in a bad position here. You don't want to go to the hospital, but I have no real tools here to help you in a situation like that."
Nothing was really settled yesterday. I still have no idea what I'll do if he becomes manic again, I suppose I'd have to call the police and have him hospitalized against his will, but man, I hate the thought of having to do that.
Since he missed another nights sleep last night, I imagine the next day or two are going to be interesting.
So, I'm learning. I'm learning how to find the right words and the right moments to impact Josh's thinking.
Please keep Josh in your prayers. I'm almost sure the roller coaster is cresting the hill again.
Vacation Update
Originally posted on my private blog on May 30, 2010
We're here on this beautiful Florida Island. My time is focused almost solely on Josh. I have a pocket of free time in the mornings because I'm an early riser and Josh sleeps until about 10. I may not be able to finish this post and tie it up with a bow, so I'll get to the important points first.
Josh is doing better everyday.
Our trip down was difficult, but only in the sense that I felt I was traveling with a 12 year old Zombie. Josh didn't talk a lot and when he did there were moments of delusion that popped out. He complained a lot about the medication he was taking, how it made him feel both physically and mentally. I have been concerned that forcing him to stay on this medication for the duration of our vacation was a mistake, there is a fair measure of guilt that comes into play when you hear and see the effects of your decision.
But each day I've seen improvements in his general mood, I've seen very little delusion. He is less Zombie like, but very 'slow' thinking, which is unlike him. Yesterday was the best day yet. We went out to breakfast, did our grocery shopping for the week and then spent several hours at the beach. We drove into town last night and played putt putt, stopped for ice cream and then came back to the condo and watched a movie together.
Josh seems to get very sad in the evenings and there are tears and proclamations that his future is nonexistent.
I talk and cry with him, reassure him that on the other side of all this, there is hope. I hold him when he cries and tell him how much I love him.
Josh told me that he finds this place very relaxing and you can see that in his demeanor. He is very calm, but he worries about the short term memory loss that is a side effect of this medication. I remind him that many of these side effects dissipate over time, that his body and brain are working hard to adjust.
Putt putt is something that the boys and I have always done together, no matter where we vacation. I pretty much suck at it and Josh, being the very competitive person that he is, takes the whole thing very seriously. When he suggested Putt Putt last night it thrilled me that he wanted to do something that was so much a 'normal' part of our vacations.
I schooled him. I've NEVER beaten him at Putt Putt before, the ending score was very close. I was three over par, he was four over. I told him later, "Well, I considered letting you win, like I used to do when you were little."
He got a sly smile and busted out laughing, cause he knows I never LET him win in the past, I just suck.
And right there in that little story is the saddest part of this for me. To see him like he was while we played, his reaction to my little joke...well, it's heartbreaking to think that such a small, seemingly insignificant moment can take on such magnitude, because all I can hang my hat on right now are the smallest of 'victories'.
When we stopped for ice cream last night, the two girls working the counter were HOT, and they were all over him, didn't take their eyes off him. They flirted and he flirted back. Josh so badly wants a girlfriend and he's feeling unattractive and undesirable. The fact of the matter is that Josh is a very good looking guy, but in his current emotional state, he'd scare any girl away who got close enough to see his cracks. Clearly though, he's still 'got it'.
When we sat down with our cones I told him, "Those girls were eye f@*king you."
This town is very different than the island we're staying on. As we drove through, there were hot men and women everywhere, barely clothed. On the island, it's mostly families and couples and the median age is probably 40. Not many hot bodies on the beaches here.
"Maybe you'd like to come over here to the beach one day? It might be more fun than the beach at the condo."
"I dunno Mom. Yea, there are lots more hot girls over here, but I'm not gonna really meet any of them and it might just drive me nuts having to look at them all."
My problem is going to be keeping Josh occupied. I imagine everyday we'll spend several hours on the beach (as long as no oil washes ashore) or at the pool and then we'll have an afternoon activity of some kind planned. I'm going to try to find time tomorrow morning to search for activities off island, I even considered looking into driving to Orlando and spending an evening and day at Universal Studios/Islands of Adventure.
Keeping us occupied could wind up costing me a fortune :)
So, all in all, he's doing as well as I could hope for and I have my fingers crossed that there is no backsliding, that each day continues to present gifts.
I'm missing my boyfriend; missing the vacation that we were supposed to share.
Like Josh, it's easy to look at where my life is at RIGHT NOW and wonder about my own future. I'll be 53 years old in a few weeks and once again, I'm all alone. My desire to find that one special person to spend the rest of my life with seems like just that, desire, with little hope. On the other hand, as Josh said yesterday, "Jesus Mom, you don't LOOK 53, you're in great shape and you're smart and funny, don't count yourself out. Just like those girls in the ice cream store, I see guys checking you out all the time."
"Yea, well, that's what guys do honey, it doesn't mean much."
"Well, guys don't check out the unattractive girls Mom."
I do know this. I feel strongly that everything having to do with this vacation has played out the way it was supposed to. Bringing Josh here was fraught with concerns and yet, so far, I can see that this time can be very valuable for him. This time with ME, this time to adjust to his medication. And I believe the situation with my boyfriend has played out as it was meant to. Who knows, perhaps this is what needed to happen FOR him?
And because I so strongly believe in the concept that everything happens for a reason, I have to have faith that there was a reason for all of this and that God has plans for me and for my future that I can't even imagine at this point.
Now, Josh is up and I'm off to make him breakfast.
We're here on this beautiful Florida Island. My time is focused almost solely on Josh. I have a pocket of free time in the mornings because I'm an early riser and Josh sleeps until about 10. I may not be able to finish this post and tie it up with a bow, so I'll get to the important points first.
Josh is doing better everyday.
Our trip down was difficult, but only in the sense that I felt I was traveling with a 12 year old Zombie. Josh didn't talk a lot and when he did there were moments of delusion that popped out. He complained a lot about the medication he was taking, how it made him feel both physically and mentally. I have been concerned that forcing him to stay on this medication for the duration of our vacation was a mistake, there is a fair measure of guilt that comes into play when you hear and see the effects of your decision.
But each day I've seen improvements in his general mood, I've seen very little delusion. He is less Zombie like, but very 'slow' thinking, which is unlike him. Yesterday was the best day yet. We went out to breakfast, did our grocery shopping for the week and then spent several hours at the beach. We drove into town last night and played putt putt, stopped for ice cream and then came back to the condo and watched a movie together.
Josh seems to get very sad in the evenings and there are tears and proclamations that his future is nonexistent.
I talk and cry with him, reassure him that on the other side of all this, there is hope. I hold him when he cries and tell him how much I love him.
Josh told me that he finds this place very relaxing and you can see that in his demeanor. He is very calm, but he worries about the short term memory loss that is a side effect of this medication. I remind him that many of these side effects dissipate over time, that his body and brain are working hard to adjust.
Putt putt is something that the boys and I have always done together, no matter where we vacation. I pretty much suck at it and Josh, being the very competitive person that he is, takes the whole thing very seriously. When he suggested Putt Putt last night it thrilled me that he wanted to do something that was so much a 'normal' part of our vacations.
I schooled him. I've NEVER beaten him at Putt Putt before, the ending score was very close. I was three over par, he was four over. I told him later, "Well, I considered letting you win, like I used to do when you were little."
He got a sly smile and busted out laughing, cause he knows I never LET him win in the past, I just suck.
And right there in that little story is the saddest part of this for me. To see him like he was while we played, his reaction to my little joke...well, it's heartbreaking to think that such a small, seemingly insignificant moment can take on such magnitude, because all I can hang my hat on right now are the smallest of 'victories'.
When we stopped for ice cream last night, the two girls working the counter were HOT, and they were all over him, didn't take their eyes off him. They flirted and he flirted back. Josh so badly wants a girlfriend and he's feeling unattractive and undesirable. The fact of the matter is that Josh is a very good looking guy, but in his current emotional state, he'd scare any girl away who got close enough to see his cracks. Clearly though, he's still 'got it'.
When we sat down with our cones I told him, "Those girls were eye f@*king you."
This town is very different than the island we're staying on. As we drove through, there were hot men and women everywhere, barely clothed. On the island, it's mostly families and couples and the median age is probably 40. Not many hot bodies on the beaches here.
"Maybe you'd like to come over here to the beach one day? It might be more fun than the beach at the condo."
"I dunno Mom. Yea, there are lots more hot girls over here, but I'm not gonna really meet any of them and it might just drive me nuts having to look at them all."
My problem is going to be keeping Josh occupied. I imagine everyday we'll spend several hours on the beach (as long as no oil washes ashore) or at the pool and then we'll have an afternoon activity of some kind planned. I'm going to try to find time tomorrow morning to search for activities off island, I even considered looking into driving to Orlando and spending an evening and day at Universal Studios/Islands of Adventure.
Keeping us occupied could wind up costing me a fortune :)
So, all in all, he's doing as well as I could hope for and I have my fingers crossed that there is no backsliding, that each day continues to present gifts.
I'm missing my boyfriend; missing the vacation that we were supposed to share.
Like Josh, it's easy to look at where my life is at RIGHT NOW and wonder about my own future. I'll be 53 years old in a few weeks and once again, I'm all alone. My desire to find that one special person to spend the rest of my life with seems like just that, desire, with little hope. On the other hand, as Josh said yesterday, "Jesus Mom, you don't LOOK 53, you're in great shape and you're smart and funny, don't count yourself out. Just like those girls in the ice cream store, I see guys checking you out all the time."
"Yea, well, that's what guys do honey, it doesn't mean much."
"Well, guys don't check out the unattractive girls Mom."
I do know this. I feel strongly that everything having to do with this vacation has played out the way it was supposed to. Bringing Josh here was fraught with concerns and yet, so far, I can see that this time can be very valuable for him. This time with ME, this time to adjust to his medication. And I believe the situation with my boyfriend has played out as it was meant to. Who knows, perhaps this is what needed to happen FOR him?
And because I so strongly believe in the concept that everything happens for a reason, I have to have faith that there was a reason for all of this and that God has plans for me and for my future that I can't even imagine at this point.
Now, Josh is up and I'm off to make him breakfast.
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