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Tuesday, July 6, 2010

Why do they have to make it so hard?

Josh was referred to an Endocrinologist by our Primary Care Physician.

No one mentioned how difficult it is to get an appointment with an Endocrinologist.

I was given three names and checked with Josh's insurance company to determine which doctors were in his network. I then called to schedule an appointment.

Sheesh!

You can't make an appointment with any of these doctors without first having a years worth of medical records sent to them so they can determine the urgency of care needed, but the real kicker is that once they receive the records, the first available appointment isn't until mid to late September.

This was the case with all three doctors I called.

It seems to me that they're going to need not only Josh's records from his Primary Care Physician, but also records from his IOP at the Stress Center back in January, AND his records from the Psych Hospital.

By the time they receive all that information, I imagine the September appointments will be filled and we'll be looking closer to October.

And in all of this, there is an issue with Josh's Student Aid for the Fall Term. We have to present documentation from a physician stating that Josh is OK to attend school in the Fall. The problem is that Josh isn't really under any doctor's care right now. The student aid office doesn't know that he has been diagnosed as Bipolar, they are concerned with the depression that caused him to fail out of last Fall's classes. This documentation needs to be to the Student Aid office by the 14th of July. We were hoping that Josh's Thyroid tests would come back and indicate an underlying Thyroid condition that we could state we were treating.

Josh and me have an appointment with his therapist, Peter, this Wednesday. Peter is willing to compose a letter that explains the situation; that Josh recovered fully from the depression, became sleep deprived that resulted in a manic episode, whereby he was diagnosed with Bipolar. But then it gets a little tricky. We are not treating Josh's Bipolar at the moment, so Peter is going to have to dance around a bit, stating that Josh is functioning well right now and will treat any further episodes, if they occur, as needed.

Josh has FREE money available this year, for the first time, and I hate the thought of him losing out on that. He has decided to start back to school in a very cautious manner, taking only three classes. While he hates taking such a light class load, he understands that he needs to avoid stress. I told him that he could catch up during the summer session, but that since we really don't KNOW what might happen; he could experience more Bipolar issues, that a cautious approach would be best.

Worse case scenario, I will have to pay for his classes this year and I hate to do that since I have spent so much money on his medical bills this year. I don't think it is in Josh's best interest to sit out the Fall Term. I feel strongly that he needs to 'get his life back' because it has spiraled horribly out of control over the last year. Some normalcy would be good for him and he needs to be working towards a goal and school would force him to get on a healthier schedule.

In addition to the medical issues he is facing, his employer (a national chain) is close to bankruptcy. He may not have a job for long and they have cut back every one's schedules to the point that Josh is working only about 10 hours a week. Jobs are hard to come by though, especially with the college kids home for the summer. Josh's older brother has been unemployed now for a year and a half and his unemployment benefits ended three weeks ago. His brother is in that first wave pool of people who were laid off, so there will be a glut of those people whose unemployment benefits have ended, who are aggressively seeking any available opportunities. Which means it will be even more difficult for Josh to find employment.

Added to my financial woes is the fact that for the first time EVER, Josh's brother has had to ask me for money, and I'm sure his needs will continue.

Right now everything, every aspect of our lives, is in flux and that's a very uncomfortable position to be in. Josh could experience Bipolar symptoms at any moment, or he could be fine for years. It's hard to know WHAT to do because nothing is a given, so we'll just have to take things as they come, deal with the issues in front of us each day and be frugal as hell because everybody is in my pocket right now.

Sigh.

4 comments:

schmadrian said...

How is Josh, now that he's been off the meds for a while? You haven't really touched on how he's doing in that sense.

It sounds like, seeing as we're heading into the second week of July, that Josh will have a fair amount of time on his hands between now and school starting. Assuming he won't be able to get work, how will he be occupying his time?

Has he thought about blogging about all this? (No, I'm not being glib.)

Have the T-shirt said...

Schmadrian,

Josh is doing great, mood wise. He's being helpful around the house (he recently started cleaning the entire house every Friday in an attempt to better "earn his keep). That's been a Godsend for me and I so appreciate it.

He has not been so great with the job search. I'd like him to find something that requires more hours than his current job does. We met with his therapist yesterday and they discussed it. Josh said he was going to apply for a few places I'd suggested, so I hope he will.

He is spending a lot of time with his GOOD friends, the ones who are GOOD kids and I know he is much less lonely now as a result.

So compared to where we were, this feels much better, but we also are in wait and see mode, not knowing what might happen next.

Have the T-shirt said...
This comment has been removed by the author.
schmadrian said...

So coming up to two weeks after this post, how are things with Josh? Regarding the bipolar aspect, but everything else leading up to college in not-that-long-a-time, now?

With you not posting, would you be tempted to move away from the bipolar diagnosis?

Are you still attending the support group sessions? Is Josh addressing any of the background issues?